Woman With Early-Onset Dementia Embroiders What Her Brain Looks Like to Her

When we’re healthy, we don’t have to think about what is failing in our bodies. After all, part of being healthy is not having to constantly consider what is ailing us; everything is working as it should. But when someone is diagnosed with a terminal disease, they have no choice but to consider the part of their body that is in trouble—it can affect every aspect of their life. A Twitter user named Charlotte shared how her mom, who has early-onset dementia and epilepsy, thinks about her brain. Her mom used embroidery to create a visual representation of how her own brain looks to her.

The resulting piece gives color to what could be considered dark, as these are serious conditions. Charlotte’s artist mom has created sections of the brain using vibrant jewel-toned hues and a variety of stitching along with materials including beading. Together, they produce an assortment of textures. There are portions of the embroidery where threads cross over one another, while layered beads offer dimensionality to the overall design. Each section is varied—be it in color, stitching, or materials—demonstrating how parts of the brain look different but together act as one.

There is a feeling of hopefulness to this piece. While Charlotte’s mom is dealing with serious neurological issues, she appears to view her brain as a place of beauty and cherishes what she has now.

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Sara Barnes

Sara Barnes is a Staff Editor at My Modern Met and Manager of My Modern Met Store. She is a graduate of the Maryland Institute College of Art where she earned her BFA in Illustration and MFA in Illustration Practice. Sara is also an embroidery illustrator and writer living in Seattle, Washington. She runs Bear&Bean, a studio where she stitches pet portraits and other beloved creatures. She chronicles the creativity of others through her website Brown Paper Bag and newsletter, Orts. Her latest book is Threads of Treasure: How to Make, Mend, and Find Meaning Through Thread, published in 2014. Sara’s work has been recognized in Be Creative With Workbox, Embroidery Magazine, American Illustration, on Iron and Wine’s album Beast Epic, among others. When she’s not stitching or writing, Sara enjoys planning things that bring together the craft community. She is the co-founder of Camp Craftaway, a day camp for crafty adults with hands-on workshops in the Seattle area.
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